Making a Difference for someone with ALS

ice-bucket-challengeRemember the social media rage that was the ‘Ice Bucket Challenge’ for ALS last summer? In case you forgot, it was an activity involving dumping a bucket of ice water on someone’s head to promote awareness of the disease amyotrophic lateral sclerosis (also known ALS or “Lou Gehrig’s disease”) and encourage donations to research to find a cure for the disease. It went viral on social media during July and August of 2014. Here in the US, many people participated and donated money to the ALS Association as a result of this phenomenon, although some opted to donate their money from the Ice Bucket Challenge to other organizations and causes that they were interested in.

The challenge encouraged nominated participants to be filmed having a bucket of ice water poured on their heads and then nominating others to do the same. A common requirement was that nominated participants had 24 hours to comply or forfeit and make a charitable financial donation.

While this was fun and generated important awareness and funding for ALS, we have a story to share with you where awareness was put into tangible effort that yielded results that are at the very least quality of life enhancing if not actually life-saving.

Scott and his wife Stacy live in southern Lancaster County. Scott has ALS. In addition, Stacy is diabetic and wears an insulin pump. When Scott was diagnosed he was given about 3 years to live. He is now six years past that original diagnosis and prediction.

For whatever reason(s) Scott and Stacy lose electric power rather frequently. This is problematic because Scott sleeps using a breathing machine at night. Losing power overnight could pose serious consequences for him. So far power outages that have occurred since his diagnosis have either occurred during the day and/or when he was not at home.

Financial and quality of life issues are at times quite daunting for Scott and Stacy.

2014101195103753In an effort to deliver some relief, a group of people and businesses banded together to aid Scott and Stacy. Brubaker Inc., Commonwealth Fire Protection, Erb Brothers Nursery, Suburban Propane, and Thomas Somerville Company, along with a handful of individuals furnished and installed a Honeywell whole house propane fired emergency power generator for Scott and his family. The work was performed over two Saturdays, this past October 11th and October 18th. With the completion of this project, his family now had peace of mind knowing that they no longer had to worry about losing power overnight while Scott sleeps with a breathing device.

Interestingly enough, an event happened on Friday the 14th, barely 4 weeks after the installation. Scott and Stacey’s home lost power. The new generator that was installed performed flawlessly for them until the power was restored sometime Saturday November 15th.

Scott looks on as the installation nears completion.

Scott looks on as the installation nears completion.

Over that weekend Stacy sent a text message to Erik Weiss, Brubaker Inc.’s Commercial Division Manager stating how she thanked God for His mercy and provision in having that generator. Without it Scott would have dealt with serious consequences because of his dependence on a breathing machine.

We at Brubaker Inc. wish to thank Commonwealth Fire Protection, Erb Brothers, Suburban Propane, and all of the individuals who teamed together to make a difference for this family. We also want to recognize and thank Erik Weiss, our Commercial Division Manager and personal friend of Scott’s who spearheaded this effort. There is tremendous gratification in taking action over just generating awareness to make a difference in other people’s lives.

Below are more images from the project:

 

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